Checklist for rapid assessment of independence in children with pediatric rheumatic diseases in transition to adult medical care

Abstract

Objectives The Committee for Support of Transition to Adult Medical Care, Pediatric Rheumatology Association of Japan, has developed a checklist for patients with pediatric rheumatologic diseases to evaluate readiness for transition to adult medical care. Methods Using checklists for general pediatric chronic diseases developed by researchers at the Ministry of Health, Labour and Welfare, committee members discussed points for modification or addition specific to pediatric rheumatic diseases and pediatric rheumatism clinical practice. Results Three patient-assessment checklists based on patient age and understanding level and a parent-assessment checklist were developed. The checklist for junior high school students and above included a ‘Health Education in Adolescence and Young Adulthood’ section with items related to sexual knowledge and concerns. Also, items on oral medications and subcutaneous injections management in the ‘Self-management of Daily Medical Care,’ domain and next medical visits management were added. The checklist for junior high school students included 30 items in seven domains and can be completed within 10 minutes. The checklist was given to 28 children with pediatric rheumatic diseases aged 10 years and older and their mothers. Conclusion The checklist was developed to share the challenges of independence during transition with patients and parents.