Abstract

BackgroundAs a result of advances in pediatric care and diagnostic testing, there is a growing population of adults with congenital heart disease (ACHD). The purpose of this study was to better define the epidemiology and changes in the trend of hospitalizations for ACHD in Korean society.MethodsWe reviewed outpatient and inpatient data from 2005 to 2017 to identify patient ≥18 years of age admitted for acute care with a congenital heart disease (CHD) diagnosis in the pediatric cardiology division. We tried to analyze changes of hospitalization trend for ACHD.ResultsThe ratio of outpatients with ACHD increased 286.5%, from 11.1% (1748/15,682) in 2005 to 31.8% (7795/24,532) in 2017. The number of ACHD hospitalizations increased 360.7%, from 8.9% (37/414) in 2005 to 32.1% (226/705) in 2017. The average patient age increased from 24.3 years in 2005 to 27.4 in 2017. The main diagnosis for admission of ACHD is heart failure, arrhythmia and Fontan-related complications. The annual ICU admission percentage was around 5% and mean length of intensive care unit (ICU) stay was 8.4 ± 14.6 days. Mean personal hospital charges by admission of ACHD increased to around two times from 2005 to 2017. (from $2578.1 to $3697.0). Total annual hospital charges by ACHD markedly increased ten times (from $95,389.7 to $831,834.2).ConclusionsThe number of hospital cares for ACHD dramatically increased more than five times from 2005 to 2017. We need preparations for efficient healthcare for adults with CHD such as a multi-dimensional approach, effective communication, and professional training.

Highlights

  • As a result of advances in pediatric care and diagnostic testing, there is a growing population of adults with congenital heart disease (ACHD)

  • The increase in adult Congenital heart disease (CHD) patients in South Korea is a global trend in the developed countries, and special programs for them have been reported in many societies [6, 7]

  • We reviewed the medical records of outpatients and inpatients from 2005 to 2017 in the pediatric cardiology division of Seoul National University Children’s Hospital

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Summary

Introduction

As a result of advances in pediatric care and diagnostic testing, there is a growing population of adults with congenital heart disease (ACHD). The incidence of adults living with CHD has been increasing every year due to remarkable advances in surgically or percutaneously interventional techniques and devices and knowledge of critical care for patients with CHD [2]. The majority of these adult patients cannot be considered to be completely cured, as most lesions have a chronic course, even after repair.

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