Challenging lives: an exploratory qualitative study of quality of life in young adults living with a chronic neurological condition

Abstract

Objectives:The transition from adolescence to young adulthood is traditionally a time of self-discovery, career establishment, and the development of relationships. However, for young adults with a chronic illness this time in life can be very challenging, and the management of the transition is crucial for these young adults to reach their potential. The purpose of this study was to explore the lived experiences, perceptions, and challenges of young adults with a chronic neurological condition undergoing the transition from adolescence to adulthood. The Quality of Life model was used to inform the interview schedule and explored two specific areas: identity and condition.Methods:Six participants with chronic neurological conditions (age 18–25 years) took part in the study. Audio-recorded semi-structured interviews were transcribed verbatim and analyzed using Interpretive Phenomenological Analysis.Results:The findings revealed a number of interlinking superordinate themes across the participants: ‘condition’, ‘support’, ‘strive for independence’, and ‘transition’.Conclusions:The findings of this exploratory study provide a visible indication of the specific needs of the participant group, including informational and social support needs, and removal of barriers for successful participation. They also highlight holistic service requirements and the interlinking relationships of the direction of support which could be provided to meet these needs.