Abstract
Objective:Cancer is the third leading cause of death in Iran. Todays, caregiving to patients with cancer is shifting towards home based care, and home care needs from a caregiver’s perspective can help improve the patient care. This qualitative study aimed to examine the home care needs of cancer patients from the perspective of home care nurses. Methods:This is a qualitative descriptive study carried out at home care centers in the northwest of Iran. A total of 15 participants were recruited through purposive sampling and underwent face-to-face semi-structured interviews. Data were analyzed through Conventional content analysis method in MAXQDA software. Measures of trustworthiness were established throughout the study using Lincoln and Guba’s (1985) criteria (dependability, credibility, transferability, and confirmability). Results:Data analysis resulted in the extraction of four main categories including physical needs (pain relief, gastrointestinal problems including nausea and anorexia and nutritional problems, lethargy, wound care), psychological support (need for hope and emotional support), educational needs (need for information and self-care) and financial support (service insurance coverage, charity support). To promote these patients home care, insurance coverage of nursing home care services was emphasized by the participants. Conclusion:Various aspects of cancer patients home care needs were identified. Interdisciplinary home-based palliative care collaboration is needed to address their physical, psychological, and moral needs.
Highlights
Cancer is the third leading cause of death in Iran
Four categories related to the home care needs of cancer patients were identified through the data analysis: physical needs, psychological support, educational needs, and financial support
A review study by Wang et al, (2014) on the unsatisfied needs of cancer patients showed that these patients have several needs such as physical, financial, social, and spiritual needs (Kang et al, 2014), which is in line with the findings from the present study that include the various aspects of these needs
Summary
Cancer is the third leading cause of death in Iran. The GLOBOCAN 2020 estimates that there were 19.3 million new cases of cancer and almost 10 million deaths from cancer in 2020 (Sung et al, 2021) Cancer incidence, crude rate, and age-standardized rate (ASR) in Iran increased in 2000-2016 with vast heterogeneity by cancer type, province, and sex (Rajai et al, 2020). new statistics in Iran showed that there were 13,111 new cases of cancer and 79,137 deaths In 2020, and stomach cancer the most commonly diagnosed cancer and the leading cause of cancer death in Iran (Sung et al, 2021), the increasing trends in incidence of most common cancers in Iran reinforce the need for the tailored design and implementation of effective national cancer control programs across the country (Roshandel et al, 2021).Cancer leads to many problems for the patients and their families(Wilson et al, 2016). New statistics in Iran showed that there were 13,111 new cases of cancer and 79,137 deaths In 2020, and stomach cancer the most commonly diagnosed cancer and the leading cause of cancer death in Iran (Sung et al, 2021), the increasing trends in incidence of most common cancers in Iran reinforce the need for the tailored design and implementation of effective national cancer control programs across the country (Roshandel et al, 2021). It is necessary to develop a comprehensive and holistic care plan for the cancer patients to overcome these problems and improve the quality of life of these patients and their families in various aspects of life (Hui and Bruera, 2016). Daraie et al study showed that the family caregivers were in need of training and support from professionals (Daraie et al, 2021)
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