Caregivers’ perceptions of lying to people with dementia in Denmark: a qualitative study

Abstract

Objectives This study aims to examine caregivers’ perspectives on and justifications for lying when caring for people with dementia. Method The data consisted of interviews and observations of discussions among family and professional caregivers with various educational backgrounds. Thematic analysis was applied to identify key themes related to caregivers’ perspectives on lying. Results The study revealed that lies were frequently employed by caregivers and were seen as effective tools in the caregivers’ toolkit. These practices were often labelled ‘white lies’ and were rationalised based on their potential to enhance the well-being of people with dementia or to facilitate smooth interactions. The potential negative consequences of lying were also acknowledged. In addition, some caregivers suggested that the practice of ‘stepping into the person with dementia’s reality’ might not constitute lying. Conclusion The findings suggest that the caregivers perceived lying to be a legitimate strategy when caring for people with dementia; surprisingly, some did not recognize their practices as constituting acts of lying at all. This finding carries significant clinical relevance, as the varying perceptions of lying underscore the potential need for a consistent approach to deception. Addressing this complexity can lead to more ethical caregiving practices, ultimately enhancing the quality of care provided to people with dementia.