Caregivers’ Burden and Anticipatory Grief Increases Acute Health Care Use in Older Adults with Severe Dementia

Abstract

ObjectivesTo assess the bidirectional association of caregivers’ burden and anticipatory grief with acute health care use (inpatient or emergency admission) among older adults with severe dementia. DesignProspective cohort. Setting and ParticipantsA total of 215 family caregivers of older adults with severe dementia in Singapore were surveyed every 4 months for 3 years (up to 10 surveys). We measured caregiver burden using the Caregiver Reaction Assessment scale and anticipatory grief using the Marwit Meuser Caregiver Grief Inventory-Short Form. MethodsUsing separate multivariable mixed-effects logistic regressions, controlling for relevant confounders, we assessed the association of caregiver burden and anticipatory grief (independent variables measured at time t) with older adults' acute health care use in the next 4 months (outcome measured at time t + 1). We also performed separate multivariable mixed-effects linear regressions to assess the association of older adults’ acute health care use in the past 4 months (independent variable measured at time t) with caregiver burden and anticipatory grief (outcomes measured at time t). ResultsAt baseline, 33% of the older adults had an inpatient or emergency admission in the past 4 months. Regression results showed that higher caregiver burden [odds ratio (OR), 1.58; 95% CI, 1.15–2.16] and anticipatory grief (OR, 1.02; 95% CI, 1.00–1.04) significantly increased the likelihood of older adults experiencing acute health care use in the next 4 months. However, older adults' acute health care use in the past 4 months did not significantly change their caregivers’ burden or anticipatory grief. Conclusions and ImplicationsHigher caregiver burden and anticipatory grief increase the likelihood of older adults having acute health care use. Addressing caregivers’ well-being has implications for reducing acute health care use in older adults and the economic burden of severe dementia.