Abstract

Chronic kidney disease affects almost all aspects of life of the patients and caregivers. Dialysis is a common treatment modality for chronic renal failure. The caregivers of patients undergoing hemodialysis bear the emotional and psychological stress of having a chronically ill patient. The physical and psychological distress, limitations in personal and social activities, loss of freedom, financial limitations directly or indirectly affect the level of burden among caregivers. This study aims to study the level of burden among caregivers of patient undergoing hemodialysis. A descriptive cross-sectional study among 123 caregivers giving care to hemodialysis patients for at least 3 months at Teaching Hospitals, Chitwan was carried out using simple random sampling technique. Level of burden was evaluated using the burden questionnaire (Zarit Burden Interview). The study revealed that 60 (48.78%) had mild to moderate, 53 (43.08%) had moderate to severe. The median scores for burden among the caregivers was (39.30±11.68) with 44.65%. Coping Strategies, social support, support interventions has greater impact on caregivers in achieving their roles in caring the patients and increases the capability to cope effectively with the patient's condition.

Highlights

  • Chronic kidney disease affects almost all aspects of life of the patients and caregivers

  • A descriptive cross-sectional study among 123 caregivers giving care to hemodialysis patients for at least 3 months at Teaching Hospitals, Chitwan was carried out using simple random sampling technique

  • This study aims to study the level of burden among caregivers of patient undergoing hemodialysis

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Summary

Introduction

Chronic kidney disease affects almost all aspects of life of the patients and caregivers. Hemodialysis is a treatment modality which contributes to the better physical condition of the patient by preventing further complications due to uremia.[1] According to Global Burden of Disease Study, kidney disease was the 12th most common cause of death, accounting for 1.1 million deaths worldwide[2] and as per World health ranking the death rate in Nepal in case of kidney disease is 21.72 per 100,000 and Nepal falls in 52nd rank among 183 countries.[3]. Patients on dialysis require caregiving and assistance in their daily lives from family members and others for hospital visitation and supervised administration which places a considerable burden on caregivers.[4] The family burden is mainly caused by the combination of physical work, emotional pressure, social restrictions, and economic demands during the provision of care to their patients and this has been found to be associated with a significant reduction in caregivers’ quality of life and their health status.[5].

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