Abstract
ABSTRACTObjective:to know the care provided by family caregivers of children submitted to hematopoietic stem cell transplantation. Method:the Grounded Theory was used as methodology. The study comprised four sample groups, comprising 36 caregivers. Data were collected by semi-structured interviews and analyzed according to the coding proposed by Strauss and Corbin in three phases: open, axial and selective. Results:eight propositions were identified for the care provided to the child in the researched context, namely administering medications; attention to cleaning issues; care with water and food intake; care with the body; experiencing protective isolation; addressing the child’s need for emotional support; addressing the child’s self-care; and facing complications. Conclusion:the different aspects in which the caregiver acts in the care of the child were understood. Such care equips the health team to elaborate measures for guidance and preparation of home care that are effective and directed to the needs of the patient and their family. The understanding of the care that they accomplish enables the caregiver a greater understanding of their role, as well as of the decisions they will make by their being under treatment.
Highlights
In a variety of illnesses, hematopoietic stem cell transplantation (HSCT) becomes the most viable treatment option, such as malignant, hereditary, immunological, metabolic and oncological hematologic diseases[1]
We tried to answer the question: What are the care that the family caregiver of a child submitted to hematopoietic stem cell transplantation performs when the care happens to occur within the home environment? To answer this question, the objective is to know the care taken by the family caregiver of the child submitted to hematopoietic stem cell transplantation
Each proposition was elaborated from the organization and relationship between categories, subcategories and codes. From this social phenomenon represented by the proposed theory, one of the concepts that compose the strategies developed in the experience of family home care after pediatric HSCT stood out: the care provided by family caregivers
Summary
In a variety of illnesses, hematopoietic stem cell transplantation (HSCT) becomes the most viable treatment option, such as malignant, hereditary, immunological, metabolic and oncological hematologic diseases[1] This procedure is in full expansion and reaches more and more positive results, mainly due to technological advances, which represent its potentiality, but may be its weakness[2]. This procedure is still evolving, much has been studied and developed in relation to quantitative, operational and structural questions, and subjective issues still need to be better discussed and deepened, since, even in the face of this favorable evolution, the risk of mortality and physical and psychosocial morbidity remains related to the procedure[3]. The direct care is performed by the health team in a hospital environment; after the discharge, the home represents the main environment of care and it is the family caregiver who is responsible for the decisions, remains with the patient most of the time and takes care of most of the care actions, even during the outpatient treatment after discharge from hospital
Sign-in/Register to view highlights & summary Sign-in/Register to access full text options 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
