Abstract
PurposeThis study aims to describe survivors of stroke circumstances, issues with providing care for survivors of stroke and services expected by caregivers and survivors of stroke.Design/methodology/approachA qualitative research design was conducted in Singburi Province. Data collection methods included in-depth interviews, focus groups and participatory observations. Semi-structured in-depth interview guides, quality-of-life scale and depression scale were used to collect data from survivors of stroke, their caregivers, health personnel, local governors and village health volunteers. Naturalistic research tradition was used for qualitative data analysis and descriptive statistics for quantitative data analysis.FindingsThe majority of survivors of stroke had hemiplegic limb and severe deficits in their activities of daily living. Caregivers were family members, and they often developed depression. Issues with providing care to stroke survivors included lack of knowledge about stroke and home care, inadequacy and discontinuity of care and the shortage of stroke care personnel in the community. A stakeholder's expected stroke services included the provision of effective continuing care, community participation in care and enhancing the village health volunteer's capacity.Originality/valueThis study illustrated the stroke service systems in rural Thai communities. The study's findings could be applied when planning future research using community participation to test a model of care for stroke survivors to promote better outcomes and be responsive to the needs of stroke survivors, especially those who are disabled.
Highlights
Stroke is a leading cause of death and impairment worldwide
Low-middle-income countries (LMICs) have experienced a more serious stroke problem compared to high-income countries (HICs) [2]
The challenges in managing these patients combined with inadequate rehabilitation services, lack of preventative measures and poor understanding of possible topical risk factors associated with stroke in low-middle-income countries (LMICs) may be the cause of domestic stroke burden [3]
Summary
Stroke is a leading cause of death and impairment worldwide. It caused 3% of the world’s disability burden in 1990, and the mortality rate from stroke is set to double in 2020, primarily among the elderly population [1]. The challenges in managing these patients combined with inadequate rehabilitation services, lack of preventative measures and poor understanding of possible topical risk factors associated with stroke in LMICs may be the cause of domestic stroke burden [3]. Research conducted in Thailand identified several risk factors of stroke; these included hypertension, dyslipidemia, diabetes mellitus and atrial fibrillation, which responded for 53, 30, 26 and 10% of stroke cases, respectively [8]
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