Abstract

Cancer registration is an organization for the systematic collection, storage, analysis, interpretation and reporting of data on subjects with cancer. Cancer Registry was initiated in 1995 and expanded as National Cancer Registry Program since 2003 by B.P. Koirala Memorial Cancer Hospital with the support of World Health Organization. National cancer registry program currently includes 12 hospital-based registries. First time in Nepal, B.P. Koirala Memorial Cancer Hospital piloted population-based cancer registry in 2013, which included 15 districts covering 25.8% of total population of Nepal. National cancer registry program is important to assure the quality of data from all the registries to ensure the availability of reliable and valid data of cancer cases. This will further help policymakers to develop preventive and control strategies against cancer. This paper reviews the current status of cancer registries in Nepal and discusses challenges and future perspectives related to national cancer registry program. National cancer registry should further include major hospitals in Nepal to give scientific information on cancer trends by community, provinces and regions and to analyze on survival of cancer cases. Keywords: cancer; national cancer registry program; Nepal.

Highlights

  • Cancer is the second leading cause of deaths worldwide.[1]

  • GLOBOCAN 2018 estimates that the agestandardized cancer incidence and mortality rates in Nepal to be 103.7 and 77.8 per 100,000 population in Nepal.[6]

  • A Hospital-based Cancer Registry (HBCR) is concerned with the recording of information on the cancer patients seen in a particular hospital.[16]

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Summary

INTRODUCTION

Cancer is the second leading cause of deaths worldwide.[1]. With rapid population growth and ageing worldwide and an increase in exposure to risk factors, the incidence of cancer is increasing.[2]. There are two main types of cancer registry: hospital-based and populationbased cancer registries These registries provide vital information for policymakers to assess cancer burden in the country, plan health services and develop preventive and control strategies. The increasing incidence of cancer and development of diagnostic and cancer treatment facilities in Nepal, National Cancer Registry Program (NCRP) further included five hospitals in 2013 to cover a wide range of cancer patients throughout the country They are Paropakar Maternity and Women’s Hospital (Kathmandu), Patan Academy of Health Sciences (Lalitpur), Civil Service Hospital (Kathmandu), Shree Birendra Army Hospital (Kathmandu) and Nepalgunj Medical College Teaching Hospital (Nepalgunj) (Figure 1).[11] Currently, 12 hospitals are included in the NCRP; BPKMCH is the main hub to collect, analyze and report data from all the selected hospitals.

HOSPITAL-BASED CANCER REGISTRY
DATA COLLECTION
POPULATION-BASED CANCER REGISTRY
Epidemiological data and research
Planning and evaluation of cancer control activities
Cancer coverage
Follow-up and survival data
Quality of data
Registry personnel and training
Findings
Support

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