Abstract
The Parents and Caregivers group in face of ethics in pediatrics of Ile-de-France Ethics Area wondered about association of words Disability and Cancer by focusing on study of course of children with intellectual disability, treated for cancer. These situations are exceptional, number of cases in France must not be more than fifty per year. We gathered testimony of five families of children using a semi-directive survey taking up journey from birth, announcement of handicap, diagnosis of cancer and its treatment. The verbatim show that each story is unique and rich in lessons, despite feeling of penalty: He did not deserve this, a handicap plus cancer is a lot for one person, the shot moreover. A healthcare team was also interviewed and raised an additional question: First, double penalty… then, what's point? Through these testimonies, we sought to question ethical principles of care, which can be shaken up in these extraordinary supported.
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