Can consumer research panels become an integral part of the cancer research community?

Abstract

Summary The North Trent Cancer Research Network’s Consumer Research Panel (NTCRN CRP) was established in December 2001 by the Academic Unit of Supportive Care at the University of Sheffield, UK. In three years, the CRP has succeeded in nurturing a climate of sustainable consumer involvement within the NTCRN and this has become embedded in the culture of the network. Furthermore, the Panel have championed a sustainable development of consumer involvement in health and social care research by testing new ground and forging a new way of working between health professionals and patients and carers. This UK based CRP model has been held up as an example to other cancer networks, with new Panels being set up around the country to emulate its success. This paper describes the Sheffield model of patient and public involvement and using the eight key principles of successful consumer involvement in research, identified in a recent paper by Telford and colleagues (Telford, R., Boote, J., Cooper, C., 2004. What does it mean to involve consumers successfully in NHS research? A consensus study. Health Expectations, 7, 209–220), provides a useful framework for analysing the work of the Panel. This demonstrates how consumers and professionals can inform each other to work constructively to achieve impressive research results. The need for measurable outcomes to assess the impact and effect of consumer involvement is explored.