Bureaucracy and Beyond: The Impact of Ethics and Governance Procedures on Health Research in the Social Sciences

Abstract

This piece has been written in response to a recent article published in the Times Higher Education Supplement (THES) which exposed the red tape restricting health research in the UK's National Health Service (NHS). Whilst the THES article was critical of NHS ethical review and research governance, it still views a streamlined version of the process as necessary for the protection of researchers and respondents. Drawing on the recent experience of applying for ethical approval and research governance for a qualitative study on gender and genetics, this paper examines the review process and the restrictive paperwork and procedures that surround it, focusing in particular on the impact this has on social science research. The argument will be put forward that while all research, whether clinical or social, is hampered by the bureaucracy surrounding the review process, social research is further alienated by it. This is because the paperwork and processes involved are set up to evaluate clinical, not social, research. Furthermore, the process is caught up in a culture of fear that breeds mistrust towards ‘outsiders’ wishing to conduct research in the NHS. The revision of NHS ethical review has to go further than mere bureaucratic streamlining - it needs to be made more relevant and accessible to health researchers working across a range of disciplines.