Abstract
Background: Children with mental retardation require intensive care by parents to optimize their developmental stages such as conducting medical examinations, counseling and coaching. family members are the most important part for children with mental retardation to be able to live their lives well. Aim: to explore burden of family caregivers for the children of mental retardation at Port-Said City. Subjects and Method: A descriptive cross-sectional research design was used at the only governmental schools for mental retardation in Port Said and Port Fouad city namely Intellectual Educational schools. Purposive sampling was be used. Two tools used to gather the required data consisted of; Tool (1) Astructured self administer questionnaire Tool (2) burden scale. Results: The study revealed that(20.0 %) of the studied family caregivers had no burden, followed by (32.2 %) of them had mild burden while (41.7 %) of them had moderate burden, and finally (6.1 %) of the studied family caregivers had sever burden. Conclusion: It can be concluded that about tow fifth of the studied family caregivers had moderate level of burden. Recommendations: Designing and training program to caregivers regarding coping and rehabilitation for their roles to their mentally retarded children. Special financial support should be given to these families to help them to meet extra demands and costs of caring their mental retarded children.
Highlights
Mental retardation (MR) is a source of pain to many families
Table(1): revealed that 36.2 % of family caregivers age ranges between 35-44 years old
Concerning psychological burden on mentally retarded children caregivers, the findings of the present study revealed that the largest percentage of the studied family care givers reported that having psychological burden sometimes at all aspects as: feeling stressed between caring for their relative and trying to meet other responsibilities for their family or work, feeling anger when they were around their relative, afraid what the future holds for their relative, feel strained when they were around their relative, feeling had losing of control of their life since their relative's illness and feeling uncertain about what to do about their relative
Summary
Mental retardation (MR) is a source of pain to many families. The idea of MR is considered one of the serious problems that gravelly concern the government in Egypt as well as all over the world, it can be found as back in history as around and fifty-four mentally retarded children in Egypt (World Health Statistics, 2015).The etiologies of mental retardation are multiple; this can be influenced by social, economic, cultural, racial, ethnic and other environmental factors including the demographics of age and gender. Mental retardation (MR) is a source of pain to many families. There are numerous environmental factors that often contribute to mental retardation. Toxins such as lead and mercury affect mental health. Family members are the most important part for children with mental retardation to be able to live their lives well. Aim: to explore burden of family caregivers for the children of mental retardation at Port-Said City. Recommendations: Designing and training program to caregivers regarding coping and rehabilitation for their roles to their mentally retarded children. Special financial support should be given to these families to help them to meet extra demands and costs of caring their mental retarded children
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