Abstract
to analyze the burden and the social support of the informal caregivers of people undergoing kidney dialysis. mixed study, based on the Theory of Stress and Overload, using instruments of sociodemographic characterization, the Social Support Survey from the Medical Outcomes Study, Zarit's Burden Scale, and guiding questions. Analysis of data used statistical and thematic inferences. 55 caregivers were evaluated, most were women, from 31 to 50 years old, married, and having worked in care for more than three years. A high level of affective and material support was observed, with a light overload on the caregiver. The central theme of the discourses was: "Experiences of the caregiver: between the burden of responsibility and the search for meaning". a small overload was found in the participants, with a high median in the dimensions of affective and emotional support, in the relations between positive social interactions and the burden of the caregivers, in addition to the duality or responsibility and the meaning of care.
Highlights
Chronic kidney disease (CKD) and hemodialysis bring repercussions that impair the diseased person physically, socially, culturally, economically, and spiritually
This study was approved by the Ethics Committee for Researches with Human Beings of UNIFALMG, according to Resolution No 466/12 from the National Council of Health (NCH)
The results of this study indicated the strong social support perceived, participants often mentioned that the support for themselves and for the person cared for is lacking
Summary
Chronic kidney disease (CKD) and hemodialysis bring repercussions that impair the diseased person physically, socially, culturally, economically, and spiritually. The informal caregiver is the one who provides non-professional care, receiving no payment for their services[2]. Assuming this role is a challenge, since the demands of care have an impact in the economic conditions and change the organization of the activities of the family, requiring strategies to deal with the situation[3]. This can have a negative impact, becoming a burden in the life of the caregiver. Social support can be a strategy to relief this burden
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