Building capacity to engage in co-produced research: reflections from a digital storytelling project

Abstract

This paper reviews existing approaches to inclusive, co-produced and agentic research in disability, and shares related reflections from a co-produced digital storytelling project. The project, which included self-advocates with intellectual disabilities, academics, and support staff was undertaken in Queensland, Australia, in 2018. This paper reflects on the potential and limitations of inclusive research methods by, and with, people with intellectual disabilities. We reflect on and analyse our experiences using a co-production framework and consider how this project increased participation and agency by, with, and for people with intellectual disabilities. The paper concludes with a summary of learnings and recommendations for future co-produced research activities including the importance of taking time to build capacity and establish the required foundations for more inclusive research.