Abstract
Background: This study aims to describe the demographic profile in terms of age, marital status, annual family income, and educational attainment; to describe the physical, psychological, and social manifestations; to determine and describe coping mechanisms; to determine the goals, aspirations, and needs; and, to determine the interaction and impact of the lived experiences to the quality of life of XDP (X-Linked Dystonia-Parkinsonism) patients.
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