Biobanks

Abstract

Part 1: Conceptualising biobanks 1. Biobanks and governance: an introduction - Herbert Gottweis and Alan Petersen 2. Biobanks in action: new strategies in the governance of life - Herbert Gottweis Part 2: How to build a biobank: comparing different approaches 3. The rise and fall of a biobank: the case of Iceland - Gisli Palsson 4. Estonia: ups and downs of a biobank project - Rain Eensaar 5. Patient organizations as the (un)usual suspects: the biobanking activities of the Association Francaise contre les Myopathies and its Genethon DNA and Cell Bank - Michaela Mayrhofer 6. 'This is not a national biobank...': the politics of local biobanks in Germany - Ingrid Schneider 7. Governing DNA: prospects and problems in the proposed large United States population cohort - Amy Fletcher 8. Governance by stealth: large-scale pharmacogenomics and biobanking in Japan - Robert Triendl and Herbert Gottweis Part 3: Biobanks, publics, and citizenship 9. UK Biobank: bioethics as a technology of governance - Oonagh Corrigan and Alan Petersen 10. Biobanks and the biopolitics of inclusion and representation - Richard Tutton 11. The informed consenters: governing biobanks in Scandinavia - Lars Oystein Ursin, Klaus Hoeyer, & John-Arne Skolbekken 12. Framing consent: the politics of 'engagement' in an Australian biobank project - Beverley McNamara and Alan Petersen 13. Governing through biobanks: Research populations in Israel - Barbara Prainsack