Abstract
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Highlights
In recognition of this promise, researchers, funders and governmental bodies have shared a vision to establish an internationally interoperable network of biobanks to accelerate science and innovation through enhanced data integration and the secure sharing of data and biospecimens
The agenda is both huge and ambitious. It has been accelerated in Europe through several interrelated initiatives funded by the European Commission and through close collaborations with projects outside of Europe. Primary among these are harmonization projects [1,2,3,4] and the preparatory phase of the “Biobanking and Biomolecular Resources Research Infrastructure” (BBMRI) [5] – which is a critical component of the European Strategy Forum for Research Infrastructures (ESFRI)
Spanning population- and diseasebased biobanks, harmonization platforms are being developed for biospecimen handling, ethical legal and social issues (ELSI), phenotype harmonization, biomolecular technologies, databasing, biostatistics and bioinformatics
Summary
In recognition of this promise, researchers, funders and governmental bodies have shared a vision to establish an internationally interoperable network of biobanks to accelerate science and innovation through enhanced data integration and the secure sharing of data and biospecimens. The thematic content includes a gamut of biobanking activities spanning the establishment of nascent biobank infrastructures, building cross-walks between different types of collections, harmonisation, the development of special analytical models and tools to help optimize the use of the data, biospecimen quality control and the engagement of stakeholders.
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