Abstract
Question prompt lists (QPL) are an instrument to promote patient participation in medical encounters by providing a set of questions patients can use during consultations. QPL have predominantly been examined in oncology. Less is known about their use in other contexts. Therefore, we plan to conduct a scoping review to provide an overview of the fields of healthcare in which QPL have been developed and evaluated. MEDLINE/PUBMED, PSYCINFO, PSYNDEX, WEB OF SCIENCE, and CINAHL will be systematically searched. Primary studies from different healthcare contexts that address the following participants/target groups will be included: persons with an acute, chronic, or recurring health condition other than cancer; healthy persons in non-oncological primary preventive measures. There will be no restrictions in terms of study design, sample size, or outcomes. However, only published studies will be included. Studies that were published in English and German between 1990 and 2019 will be examined. Two independent reviewers will apply defined inclusion/exclusion criteria and determine study eligibility in the review process guided by the PRISMA statement.
Highlights
Against the backdrop of the idea of patient-centered medicine [1], it is vital that patients are informed sufficiently and appropriately about their disease in order to achieve active participation in health-related decisions, adherence with the treatment regimen, and self-management/disease management [2,3,4].This is relevant in chronic diseases such as cancer where treatment-related decisions may have far-reaching consequences
Information needs are prevalent in health conditions such as acute illness or injury [11,12,13] where it is important that patients have the opportunity to obtain information about the illness, its therapy, and other related aspects
The planned scoping review presented in this protocol shall address the following question: In which areas of healthcare except oncology have question prompts been developed, evaluated, and implemented? The review shall provide insight into the contexts as well as the purpose/objectives of Question prompt lists (QPL)
Summary
Against the backdrop of the idea of patient-centered medicine [1], it is vital that patients are informed sufficiently and appropriately about their disease in order to achieve active participation in health-related decisions (e.g., specific treatment options and their potential benefits and risks), adherence with the treatment regimen, and self-management/disease management [2,3,4]. Among them are printed or online information materials for patients [15], specific decision aids [16], communication skills trainings for physicians (and, to a lesser extent, other healthcare professionals) [17,18,19], and patient education programs, often in the context of chronic disease self-management [20,21,22] Some of these methods have a more strictly defined purpose such as decision aids. While the review conducted by Sansoni et al [28] differentiated QPL by content area and type, it did not explicitly take into account the role of the particular health condition or context (e.g., family practice, medical rehabilitation) and its specifics Against this background, the planned scoping review presented in this protocol shall address the following question: In which areas of healthcare except oncology have question prompts been developed, evaluated, and implemented? The outline of this protocol is guided by the recommendations of Peters et al [44]
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