Abstract

Continuity of care (COC) has been emphasized in research on terminal cancer patients to increase the quality of end-of-life care; however, limited research has been conducted on end-stage renal disease patients. We applied a retrospective cohort design on 29,095 elderly patients with end-stage renal disease who died between 2005 and 2013. These patients were identified from the National Health Insurance Research Database of Taiwan. The provider Continuity of Care Index (COCI) and site COCI were calculated on the basis of outpatient visits during the 6–12 months before death. We discovered that increases in the provider COCI were significantly associated with reductions in health expenditures after adjusting for confounders, especially in inpatient and emergency departments, where the treatment intensity is high. Higher provider and site COC were also associated with lower utilization of acute care and invasive treatments in the last month before death. Provider COC had a greater effect on end-of-life care expenditures than site COC did, which indicated significant care coordination gaps within the same facility. Our findings support the recommendation of prioritizing the continuity of end-of-life care, especially provider continuity, for patients with end-stage renal disease.

Highlights

  • Continuity of care (COC) has been emphasized in research on terminal cancer patients to increase the quality of end-of-life care; limited research has been conducted on end-stage renal disease patients

  • The distribution of the provider Continuity of Care Index (COCI) was normalized through log transformation (Fig. 1b, left)

  • The distribution of the site COCI differed from the distribution of the provider COCI, with the overall distribution of the site COCI being relatively even before (Fig. 1a, right) and after log transformation (Fig. 1b, right)

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Summary

Introduction

Continuity of care (COC) has been emphasized in research on terminal cancer patients to increase the quality of end-of-life care; limited research has been conducted on end-stage renal disease patients. Despite the increasing recognition of the importance of end-of-life care, research and efforts to improve end-of-life care have predominantly focused on cancer p­ atients[6,7,8], which is reflected in the Clinical Practice Guidelines for Quality Palliative Care, 4th edition, published by the National Coalition for Hospice and Palliative Care in September 2­ 0189. These guidelines are primarily based on studies in cancer and cardiovascular disease patients. That the hospice palliative care enrollment rates of noncancer patients remained substantially lower than those of cancer p­ atients[14]

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