Abstract

Objective: To know the barriers in the process of building family cultural care for the child in the hospital. Methodology: This is a qualitative study with a cross-cultural theoretical reference of Madeleine Leininger, called Theory of Diversity and Cultural Universality of Care, and with a methodological reference of the ethno-inference. It was developed in 2017 at the pediatric unit of a university hospital in the south of Brazil, through non-participant observation, participant observation and interview with 15 family caregivers of hospitalized children. The data was coded, classified and scrutinized to identify the saturation of ideas and similar or different patterns; also, it was re-coded and the theoretical formulations and recommendations were performed. Ethical aspects were followed, according to the Resolution of the National Research Ethics Council 466/2012. Results: The data showed as a barrier the need for hospitalization as a factor of family vulnerability, control of the unit’s health team members, hospital norms and routines, and the need to transgress as a manifestation of family care. Conclusion: Cultural care is a process that aggregates knowledge and can be considered a new paradigm for the accomplishment of nursing care by providing the mutual growth and construction of new knowledge, an affective, reflexive, human and empathic relationship between the nurse, the child and the family.

Highlights

  • Children hospitalization is a critical time for both the child and the family

  • The data showed as a barrier the need for hospitalization as a factor of family vulnerability, control of the unit’s health team members, hospital norms and routines, and the need to transgress as a manifestation of family care

  • Fifteen family members participated in the study: 12 mothers and three grandparents

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Summary

Introduction

Children hospitalization is a critical time for both the child and the family. The experience of hospitalization for the child is generally related to the patient’s age, hospitalization time, type of condition, guidelines for hospitalization, and therapeutic contacts before, during and after the hospitalization (2). The family tends to be depersonalized as it needs to adapt to the norms and routines imposed by the hospital institution (3). It is up to the nursing professional to organize and develop caregiving actions with each family according to their needs, and participation in child care in this context (4). The stress suffered by the conflicts generated by the imposition of hospital norms and routines can compromise the care of the hospitalized children. Faced with norms and routines, the family member may feel their life invaded by different institutional duties to their beliefs, values, and habits of life (5)

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