Abstract

“Research results should be easily accessible to people who need to make decisions about their own health... Why was I forced to make my decision knowing that information was somewhere but not available? Was the delay because the results were less exciting than expected? Or because in the evolving fi eld of myeloma research there are now new exciting hypotheses (or drugs) to look at? How far can we tolerate the butterfl y behaviour of researchers, moving on to the next fl ower well before the previous one has been fully exploited?”

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