Abstract
IntroductionShared decision making is not always commonplace in advanced colorectal or lung cancer care. Decision aids (DAs) might be helpful. This review aimed (a) to provide an overview of DAs for patients with advanced colorectal or lung cancer and assess their availability; and (b) to assess their effectiveness if possible.MethodsA systematic literature search (PubMed/EMBASE/PsycINFO/CINAHL) and Internet and expert searches were carried out to identify relevant DAs. Data from the DAs included were extracted and the quality of studies, evidence (Grading of Recommendations Assessment, Development and Evaluation) and effectiveness (International Patient Decision Aid Standards) of DAs were determined.ResultsTen of the 12 DAs included (four colorectal cancer, four lung cancer and four generic) are still available. Most (9/12) were applicable throughout the disease pathway and usable for all decisions, or to the decision for supportive care with/without anti‐cancer therapy. Seven studies tested effectiveness. Effects on patient outcomes varied, but were generally weakly positive (e.g., DAs improved patient satisfaction) with low evidence. Study quality was fair to good.ConclusionThere is a lack of readily available DAs that have been demonstrated to be effective in advanced colorectal or lung cancer. Rigorous testing of the effects of currently available and future DAs, to improve patient outcomes, is urgently needed.
Highlights
Shared decision making is not always commonplace in advanced colo‐ rectal or lung cancer care
Shared decision making is an approach in which patients and cli‐ nicians discuss the best available evidence when facing decisions, while patients are assisted in expressing their preferences and be‐ coming actively involved in decision making (Elwyn et al, 2012, 2010; Longtin et al, 2010)
PubMed, EMBASE, PsycINFO and CINAHL were searched to iden‐ tify relevant articles published between January 2006 and March 2018 (comparable to what was done by Spronk, Burgers, Schellevis van Vliet, and Korevaar (2018))
Summary
Shared decision making is not always commonplace in advanced colo‐ rectal or lung cancer care. SDM is an important element of high‐ quality cancer care, with essential elements including acknowledg‐ ing patients' informed values (Stacey, Samant, & Bennett, 2008) and understanding patients’ care goals (Bernacki & Block, 2014; Kane, Halpern, Squiers, Treiman, & McCormack, 2014) It is appreciated by many patients (Degner & Sloan, 1992; Keating, Guadagnoli, Landrum, Borbas, & Weeks, 2002) and has been associated with positive patient outcomes, such as increased knowledge about the available options, better perceived quality of care and improved quality of life (Kashaf & McGill, 2015; Kehl et al, 2015; Stacey et al, 2017).
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