Autoestima y calidad de vida en los pacientes con disfunción neurogénica y derivaciones urinarias continentes y/o procedimientos para enemas anterógrados

Abstract

Introduction and objectiveThe importance of evaluating the self-esteem and quality of life of patients with a chronic disease has become increasingly relevant. The study describes self-esteem and quality of life outcomes in patients with neurogenic dysfunction and continent urinary diversions and/or antegrade enema procedures. Materials and methodsCross-sectional observational study, including patients with neurogenic dysfunction who required a continent urinary diversion and/or an antegrade enema conduit during their treatment. The self-esteem evaluation was done with the Rosenberg scale and the quality of life with the KIDSCREEN-27 questionnaire. Variables measured: socio-demographic, clinical and economic characteristics. Descriptive statistics were applied. ResultsThe mean age of the 9 patients was 15.6 years, the mean time elapsed from surgery to application of the questionnaires was 60.9±37.1 months. With a perception of improvement in 8 of the 9 patients and a normal or higher self-esteem score in all cases. In the description of physical activity and health, it was found that 7 of the 9 young people presented a perception of good health in general. A considerable reduction in the use of diapers was achieved after the intervention, going from consuming 6.2±1.4 diapers per day to only 1.7±1.3 diapers per day. ConclusionsDespite the sequelae, comorbidities and procedures, the results of self-esteem and quality of life in patients with neurogenic dysfunction are high.