Abstract
BackgroundImproving the quality of life is one of the main objectives of palliative care. Biographical approaches are often used in combination with leaving a legacy in a range of different interventions such as Dignity Therapy or Life Review. This study presents an evaluation of audiobook biographies for palliative care patients with young children.MethodsYoung parents diagnosed with a life-limiting disease could participate and create an audiobook for their young children. The audiobook itself was recorded over several days and edited by qualified radio journalists. After providing informed consent participants were interviewed twice over the course of the intervention regarding expectations, concerns, motivation, and experiences. Interviews and notes were transcribed verbatim and were analyzed using content analysis. The contents of the audiobooks are not part of the evaluation.ResultsThe data were collected from February 2017 till September 2020. Fifty-four patients with ninety-six children at a mean age of 7 years were included and created an audiobook. The main theme of all interviews were the children. Within this field identified main topics were legacy, motivation, usage, benefit, aims, difficulties and worries in descending order. All patients would recommend the intervention.ConclusionCreating an audiobook as a legacy to their children seemed to help the diseased parents to cope with their limited life span.
Highlights
Improving the quality of life is one of the main objectives of palliative care
In a review of biographical interventions in palliative care, we found several different approaches with written legacy documents [2]
Creating an audiobook seemed to help the parent to cope with their limited life span
Summary
Improving the quality of life is one of the main objectives of palliative care. Biographical approaches are often used in combination with leaving a legacy in a range of different interventions such as Dignity Therapy or Life Review. This study presents an evaluation of audiobook biographies for palliative care patients with young children. A range of interventions has been described in palliative care to cover psychosocial needs and to relieve the distress of patients. There is a growing interest in biographical approaches with the creation of legacy documents, including interventions such as Dignity therapy, Life Review, or Reminiscing [2]. Biography interventions can offer a coping strategy with the creation of a life narrative. Cuhls et al BMC Palliative Care (2021) 20:172 of the audiobook creation so that patients got it free of charge
Sign-in/Register to view highlights & summary Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
