Abstract
This qualitative study explored family and caregiver perspectives on the expression of emotion by individuals in the middle and late stages of Alzheimer's disease (AD). Indepth interviews were conducted with family members and facility staff Respondents readily ascribed expression of a wide range of emotions to individuals in the advanced stages of AD. More negative than positive emotions were identified. Caregivers attributed much of the negative emotion to individual response to the difficulties imposed by the disease. Differences by stage of the disease and sudden shifts in mood were also described, including a difficult period coinciding with recognition of increasing deficits and their consequences in the middle stages.
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