Abstract
BackgroundDown Syndrome screening test is a bridge between knowledge and uncertainty, safety and risk, unpredictability and desire to know in order to gain control. It may be accepted either not to have a baby with Down syndrome, or to prepare to have a baby with this condition. Every woman should understand that it is an option and should be encouraged to make their own decisions based on information and personal values. The implications and possible subsequent scenarios differentiate this type of test from the common biochemical tests performed during pregnancy, of paramount importance being the right to make informed choices. The aim of this study was to investigate the knowledge and attitude towards prenatal Down syndrome screening in order to asses to what extent the Romanian women make informed choices in this area.MethodsA cross-sectional study was carried out that included 530 postpartum women, clients of Romania’ south-east region maternities, during April–September 2016. The level of knowledge and the attitude concerning the Down syndrome screening were evaluated using a questionnaire. Data were analyzed using SPSS version 20.0.Results48.1% of the women have never heard about any tests for Down Syndrome and from those 51.9% who have heard, only 14.2% made an informed choice, 78.9% had a positive attitude for screening, 88% were classified as having insufficient knowledge and 68.3% made a value-consistent decision to accept or decline prenatal screening. A higher knowledge level was associated with a higher education level and the urban residence. The information satisfaction and confidence in the overall value of screening were predictive factors of positive attitude. More informed choices were made by women monitored by an obstetrician in a private practice.ConclusionsThe prenatal screening tests for Down Syndrome were mostly unknown and the women who accepted or not to perform a test were insufficiently knowledgeable that means that the ethical concept of the informed choice wasn’t followed. In our opinion the Romanian Health System needs to improve the antenatal policy by developing an adequate information strategy at the reproductive population level based on a network of trained specialists.
Highlights
Down Syndrome screening test is a bridge between knowledge and uncertainty, safety and risk, unpredictability and desire to know in order to gain control
Initially, data were collected from 530 post-partum women but after we had analyzed the questionnaires we divided the participants into two groups: Group I included 255 (48.1%) women who had never heard about any Down’ syndrome (DSS) and from whom we received only demographic and follow up data and the Group II with 275 (51.9%) women who had heard of at least one DSS
Because nearly half of the participants had never heard. For those women who have never heard of DSS, we can talk about violating the human right to be informed and implicitly about obstructing the right to have a choice which can be a good subject for another research
Summary
Down Syndrome screening test is a bridge between knowledge and uncertainty, safety and risk, unpredictability and desire to know in order to gain control. The latest technological advancement is Non-invasive Prenatal Test (NIPT), an investigation based on the analysis of free circulating fetal DNA in the maternal blood. It has a high predictability potential, that recommends it as a in line screening in case of a positive traditional DSS, in order to avoid invasive methods [5, 6]. Traditional screening tests applied in Romania in the 1st trimester are the double test and/or the combined test (weeks 11–14 of amenorrhea), in the 2nd trimester the triple (between weeks 15–20) test and pregnancy morphology These tests are not covered financially by the state and they are not part of the basic prenatal care package
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