Assessing whether child and parent reports of the KINDL questionnaire measure the same constructs of quality of life in children with attention-deficit hyperactivity disorder

Marzieh Alamolhoda,Ahmad Ghanizadeh,Zahra Bagheri,Peyman Jafari,Mohammad Farjami

doi:10.1186/s12955-020-01649-w

Marzieh Alamolhoda, Ahmad Ghanizadeh + Show 3 more

Open Access

https://doi.org/10.1186/s12955-020-01649-w

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Abstract

BackgroundDiscrepancy between child self-report and parent proxy-report has long been documented in the health-related quality of life (HRQoL) measurement of children with chronic health conditions. This study aims to assess whether child and parent reports of the Kinder Lebensqualität fragebogen (KINDL) questionnaire measure the same construct of HRQoL in children with attention-deficit hyperactivity disorders (ADHD).MethodsParticipants were 122 Iranian children with ADHD and 127 of their parents, who completed the child and parent reports of the KINDL, respectively. Internal consistency of the child and parent reports were assessed by Cronbach's alpha. The intra-class correlation (ICC) coefficient and factor analysis were applied to assess whether the child self-report and the parent proxy-report measured the same construct of HRQoL. Additionally, convergent and discriminant validity were assessed using the Spearman correlation.ResultsThe results of factor analysis revealed that the child self-report and parent proxy-report measure two different aspects of HRQoL. Moreover, both versions of the KINDL instrument showed excellent convergent and discriminant validity. The internal consistency was close to or greater than 0.7 for all domains of both child and parent reports.ConclusionsAlthough the child self-report and the parent proxy-report of the Persian version of the KINDL have good psychometric properties, they are not interchangeable. This finding indicates that Iranian children with ADHD and their parents evaluate children's HRQoL from their own viewpoints.

Highlights

Discrepancy between child self-report and parent proxy-report has long been documented in the health-related quality of life (HRQoL) measurement of children with chronic health conditions
To the best of our knowledge, this is the first study that has evaluated the psychometric properties of the Kinder Lebensqualität fragebogen (KINDL) questionnaire for a sample of children diagnosed with attention-deficit hyperactivity disorders (ADHD) and their parents
The findings of the present study indicate that the Persian versions of the child and parent reports of the KINDL are reliable and valid instruments for measuring HRQoL when applied to a sample of

Summary

Introduction

Discrepancy between child self-report and parent proxy-report has long been documented in the health-related quality of life (HRQoL) measurement of children with chronic health conditions. This study aims to assess whether child and parent reports of the Kinder Lebensqualität fragebogen (KINDL) questionnaire measure the same construct of HRQoL in children with attention-deficit hyperactivity disorders (ADHD). Child self-report is considered to be an accurate measure for assessing HRQoL, the parent-proxy report provides complementary information regarding children’s HRQoL [9, 10]. In most of the aforementioned studies, there is a consistent discrepancy across the child-self report and parent-proxy report on the children’s HRQoL [1, 12, 13]. Assessing the agreement between the child and parent reports on children’s HRQoL and choosing the most appropriate HRQoL questionnaire is an important objective in clinical research

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