Abstract
BackgroundDecision-making in perianal Crohn’s fistula (pCD) is preference sensitive. Patients use the internet to access healthcare information. The aim of this study was to assess the online information and patient decision aids relating to surgery for pCD.MethodsA search of Google™ and the Decision Aids Library Inventory (DALI) was performed using a predefined search strategy. Patient-focussed sources providing information about pCD surgery were included in the analysis. Written health information was assessed using the International Patient Decision Aids Standards (IPDAS) and DISCERN criteria. The readability of the source content was assessed using the Flesch–Kincaid score.ResultsOf the 201 sources found, 187 were excluded, leaving 14 sources for analysis. Three sources were dedicated to pCD, and six sources mentioned pCD-specific outcomes. The most common surgical intervention reported was seton insertion (n = 13). The least common surgical intervention reported was proctectomy (n = 1). The mean IPDAS and DISCERN scores were 4.43 ± 1.65 out of 12 (range = 2–8) and 2.93 ± 0.73 out of 5 (range = 1–5), respectively. The mean reading ease was US college standard.ConclusionsWe found no patient decision aids relating to surgery for pCD. The online sources relating to surgery for pCD are few, and their quality is poor, as seen in the low IPDAS and DISCERN scores. Less than half of the sources mentioned pCD-specific outcomes, and three sources were solely dedicated to providing information on pCD. Healthcare professionals should look to create a patient tool to assist decision-making in pCD.
Highlights
Crohn’s disease (CD) is one of the two major forms of inflammatory bowel disease (IBD) [1, 2]
The aim of this study was to assess the online information and patient decision aids relating to surgery for pCD
We found no patient decision aids relating to surgery for pCD
Summary
Crohn’s disease (CD) is one of the two major forms of inflammatory bowel disease (IBD) [1, 2]. It is a chronic, relapsing–remitting disease characterised by granulomatous inflammation which can affect any part of the gastrointestinal system [3, 4].Up to 30% of patients with CD develop a perianal fistula [3, 5]. Perianal Crohn’s fistula (pCD) is a debilitating manifestation of CD and adversely Title of website. Decision-making in perianal Crohn’s fistula (pCD) is preference sensitive. The aim of this study was to assess the online information and patient decision aids relating to surgery for pCD. Written health information was assessed using the Conference presentation:East Midlands Surgical Society Summer Meeting, Leicester, 2017
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