Abstract
Background: It is imperative to know further about QOL in children to assess and improve the care that they receive. Quality of life varies from other forms of medical assessments in that it emphases on the people's own opinions of their welfare and other features of life. Aim of study: Assess the quality of life among children with beta-thalassemia. Design: A descriptive research design was utilized in this study. Setting: the study was carried out at the outpatient hematology clinic at Mansoura University children's hospital in Dakahlia governorate. Sample: the study sample was collected from 124 children with beta thalassemia major. Results: Almost all the studied children who complied with blood transfusion had low QOL. Also, the majority compliant with chelation therapy had lowQOL. The studied thalassemic children experienced moderate QOL related to physical, emotional, and school functioning and experienced high QOL regarding social functioning. Conclusion: the highest percentage of the studied children had moderate levels of QOL. There was a statistically significant association between children's QOL and their knowledge. Moreover, there was a positive relation between children's ages and their total scores of QOL. Recommendation: regularand continuous health education programs are essential for children suffering from beta thalassemia and their mothers.
Highlights
Thalassemia is the most common hemoglobin disorder in the world
Almost all the studied children who complied with blood transfusion had low quality of life (QOL)
Figure (3): illustrating the frequency distribution of the studied thalassemic children according to their educational levels, it indicated that the highest percentage of the studied thalassemic children (70.2%) were in primary schools
Summary
Thalassemia is the most common hemoglobin disorder in the world. It is an inherited disease, where if the parents are carriers or affected, their children will have high probability of being affected too. Thalassemia is a major health problem in Egypt where 1–5 million neonates are anticipated to be affected with this illness, and it is the greatest common chronic hemolytic anemia (85.1%). It is imperative to know further about QOL in children to assess and improve the care that they receive. Aim of study: Assess the quality of life among children with beta-thalassemia. Sample: the study sample was collected from 124 children with beta thalassemia major. Results: Almost all the studied children who complied with blood transfusion had low QOL. The majority compliant with chelation therapy had low QOL.
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