Abstract
Asian Americans constitute 5% of the U.S. population. Their willingness to participate in research is important to examine because it influences participation rates and the representativeness of study results. A total of 17,339 community members participated from six diverse Clinical and Translational Award (CTSA) sites. Community members were asked about their willingness to volunteer for eight different types of health research, their expectation of monetary compensation for research participation, their trust in research and researchers, their preferred language to receive health information, and their socio-demographic background. We examined Asian Americans' willingness to participate in various types of health research studies and compared their perceptions with other racial/ethnic groups (i.e., Asian n = 485; African-American n = 9516; Hispanic/Latino n = 1889; Caucasian n = 4760; and other minority n = 689). Compared to all other racial/ethnic groups, Asian Americans were less willing to participate in all eight types of health research. However, Asian Americans reported a lower amount of fair compensation for research participation than African-Americans and Hispanics/Latinos but were as likely to trust researchers as all other racial/ethnic groups. Asian Americans are less willing to participate in health research than other racial/ethnic groups, and this difference is not due to dissatisfaction with research compensation or lower trust in researchers. Lack of trust in research and language barriers should be addressed to improve representativeness and generalizability of all populations in research.
Highlights
Asian Americans constitute 5% of the U.S population
Of the 485 Asian American participants, 36.3% came from the UC Davis site, 32.6% came from the University of Michigan site, and 22.1% came from the University of Florida (UF) site
The prevalence of cancer, depression, diabetes, and hypertension was lowest among Asian Americans, but the prevalence of heart disease was higher among Asian Americans compared to the other racial/ethnic groups
Summary
Asian Americans constitute 5% of the U.S population Their willingness to participate in research is important to examine because it influences participation rates and the representativeness of study results. We examined Asian Americans’ willingness to participate in various types of health research studies and compared their perceptions with other racial/ethnic groups (i.e., Asian n = 485; African-American n = 9516; Hispanic/Latino n = 1889; Caucasian n = 4760; and other minority n = 689). Results: Compared to all other racial/ethnic groups, Asian Americans were less willing to participate in all eight types of health research. Conclusion: Asian Americans are less willing to participate in health research than other racial/ethnic groups, and this difference is not due to dissatisfaction with research compensation or lower trust in researchers. Past research has consistently found that Asian Americans have lower research participation rates than other racial/ethnic groups [6,7,8,9,10,11,12] and that they are underrepresented in cardiovascular disease research [13], mental health research [14,15], cancer research [16], women’ health research [12] and community-engaged research [17]
Sign-in/Register to view highlights & summary Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
