Applying the Boot Camp Translation Method to Increase Alzheimer’s Disease Awareness in the Houston Hispanic/Latino Community

Abstract

AbstractBackgroundDespite increased risk for Alzheimer’s disease and related dementias (ADRD), Hispanics/Latinos (H/Ls) continue to be underrepresented in ADRD research. H/Ls comprise over 40% of the population in the Houston, Texas, metropolitan area. We engaged Houston H/L middle‐ and older‐age community members through a “Boot Camp Translation” (BCT), a community engaged strategy, to co‐create culturally‐responsive materials on ADRD awareness and risk reduction.MethodTwenty ADRD stakeholder organizations yielded 12 participants 35 y/o and older (Median age: 50 y/o). Participants met in three, 4‐hour virtual sessions and several phone conferences from February to June 2021. After an informative kick‐off session on ADRD clinical manifestations, epidemiology and risk reduction, participants answered these questions throughout the process: 1) main message(s) on AD for the Houston H/L community, 2) targeted audience, and 3) best method(s) to convey the message. After the process, BCT participants were invited to become part of a Community Action Board (CAB).ResultNine adults completed the BCT process. Compared to baseline, participants demonstrated improved subjective understanding and objective knowledge of ADRD at the end of the process. Local messaging centered around brain health to reduce AD stigma, importance of geriatric education for care providers, and self‐care in caregiving. Targeted audiences were the general H/L population across the lifespan, care providers and caregivers. Dissemination strategies focused on family and intergenerational relationships, with imagery and colors reflecting the diversity and vibrancy of the Houston H/L community. Final products included a “telenovela‐style” educational video series, and other graphic/ printed materials. Four of the nine participants remain active in the CAB at one year post BCT.ConclusionBoot Camp Translation is an effective way to build community trust, and design culturally relevant AD messaging. Experience was positive overall; participants developed a sense of ownership of the process, and created an atmosphere of cooperation and solidarity.