Abstract
This study aims to analyze the concept of anticipatory burden in adult-child caregivers. A systematic literature review was performed using four databases, Pubmed, CINAHL, PsycINFO and Medline, with the keywords of “anticipatory burden” and “anticipated burden”. Simplified Wilson’s classic concept analysis modified by Walker and Avant was employed to identify the attributes, antecedents and consequences of anticipatory burden in the adult-child caregivers. Eighteen articles were analyzed. Attributes of anticipatory burden in adult-child caregivers were found to be: (1) subjective burden, (2) anticipation, (3) overestimation, (4) inability, and (5) family relationship. Antecedents were identified as: (1) potential care recipients, (2) caregiving willingness, and (3) a lack of resources. Consequences included: (1) prediction of caregiving willingness, (2) impacts on caregivers’ health, (3) intervention promotion, and (4) behavioral changes. As the adult-child caregiver is one of the main types of family caregivers for the fast-growing aging population, it is important to understand the attributes, antecedents, and consequences of their anticipatory burden. Based on the results of this study, resources such as intervention, policy, and counseling services are recommended to help adult-child caregivers lower their anticipatory burden and get better prepared for providing family care.
Highlights
Around 17% of all adult children end up providing care to their aging parents [1]
The concept of caregiving burden first appeared as family burden in the literature and was primarily associated with the healthcare cost borne by family members [2]
The aim of this study is to provide a clear definition of the anticipatory burden in adult-child caregivers and a basis for its assessment and management
Summary
Around 17% of all adult children end up providing care to their aging parents [1]. The adult-child caregivers can anticipate future caregiving burdens, which would negatively affect their own health and the care recipients. The concept of caregiving burden first appeared as family burden in the literature and was primarily associated with the healthcare cost borne by family members [2]. As the understanding of caregiver burden has evolved, it is described as a multifaceted phenomenon. Its definition includes the concepts of objective burden (loss of time, energy, and social life), as well as subjective burden (emotional and relational stress) [3,4]. Financial burden is another important aspect of caregiving burden apart from the objective and subjective burden [5]
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