Abstract

BackgroundThe aim of our study was to investigate anticipated adaptation among patients in the subacute phase of Spinal Cord Injury (SCI).MethodsWe used an observational longitudinal design. Patients with SCI (N = 44) rated their actual, previous and expected future Quality of Life (QoL) at three time points: within two weeks of admission to the rehabilitation center (RC), a few weeks before discharge from the RC, and at least three months after discharge. We compared the expected future rating at the second time point with the actual ratings at the third time point, using student’s t-tests. To gain insight into scale recalibration we also compared actual and previous ratings.ResultsAt the group level, patients overpredicted their improvement on the VAS. Actual health at T3(M = 0.65, sd =0.20)) was significantly lower than the predicted health at T1 of T3 (M = 0.76, sd = 0.1; t(43) = 3.24, p < 0.01), and at T2 of T3(M = 0.75,sd = 0.13; t(43) = 3.44, p < 0.001). Similarly the recalled health at T3 of T2 (M = 0.59, sd = 0.18) was significantly lower than the actual health at T2 (M = 0.67, sd = 0.15; t(43) = 3.26, p <0.01). Patients rated their future and past health inaccurately compared to their actual ratings on the VAS. In contrast, on the TTO patients gave accurate estimates of their future and previous health, and they also accurately valued their previous health. Looking at individual ratings, the number of respondents with accurate estimates of their future and previous health were similar between the VAS and TTO. However, the Bland-Altman plots show that the deviation of the accuracy is larger for the TTO then the VAS. That is the accuracy of 95% of the respondents was lower in the TTO then in the VAS.ConclusionsPatients at the onset of a disability were able to anticipate adaptation. Valuations given on the VAS seem to be biased by scale recalibration.

Highlights

  • Patients experiencing an illness or disability generally give high Quality of Life (QoL) ratings compared to ratings given by people imagining having such an illness or disability [1]

  • Previous research suggests that this is due to people focusing on negative aspects of a disability and a failure to anticipate adaptation [2,3]

  • We collaborated with six Rehabilitation Centers (RCs) in The Netherlands specializing in Spinal Cord Injury (SCI)

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Summary

Introduction

Patients experiencing an illness or disability generally give high Quality of Life (QoL) ratings compared to ratings given by people imagining having such an illness or disability [1]. Such an underestimate of QoL by people imagining illness or disability is common. Peeters et al [5] showed that patients expected greater improvement of their QoL at the onset of a disability than they got. These findings may have been led by a measurement bias called scale recalibration. The aim of our study was to investigate anticipated adaptation among patients in the subacute phase of Spinal Cord Injury (SCI)

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