An investigation of public awareness and knowledge of aphasia in the West of Ireland

Abstract

ABSTRACT Background Research investigating public awareness of aphasia internationally shows limited awareness and knowledge. This is concerning because the literature suggests that awareness of aphasia contributes to the health, community participation and psychosocial wellbeing of people with aphasia and their families. Increased awareness promotes inclusion and influences investment in research and resources. To date there is no previous data relating to public awareness and knowledge of aphasia in Ireland. This study reports on the public awareness and knowledge of aphasia in the West of Ireland. Aim To investigate the levels of public awareness and knowledge of aphasia in the West of Ireland. Methods & Procedures This quantitative study used a standardised survey questionnaire to collect data about aphasia awareness and knowledge via face-to-face interviews in urban and rural locations in the West of Ireland. Using convenience sampling, participants (N = 600) were recruited. Information related to participants’ (1) age, gender and occupation; (2) sources of aphasia awareness and (3) awareness of other neurogenic conditions was collected and statistically analysed. Outcomes & Results Findings indicate that 19.7% of participants had awareness of aphasia which is higher than many previous studies; however, only 5.5% had knowledge of aphasia which is lower than previous research in the field. Gender and occupation significantly influenced levels of awareness and knowledge. The majority of participants identified the media and work as the main sources of aphasia information. Aphasia awareness was significantly lower than awareness of other conditions including dyslexia, stuttering/stammering and stroke. Conclusions Public awareness and knowledge of aphasia in the West of Ireland are low. This limited public understanding of aphasia may influence the involvement of people with aphasia and their families in Irish communities and the accessibility of services. Further research to determine public awareness and knowledge of aphasia in Ireland is warranted. This information will contribute to the development of a targeted, national co-designed campaign to increase levels of public awareness and knowledge of aphasia in Ireland.