Abstract
The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The policy acknowledges the potential medical benefits to millions of individuals who are participating in genomics research. It ties the pace of implementation to each country’s clinical standards, including for the return of secondary findings, and urges funders to set aside resources to support responsible return.
Highlights
The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body
In deciding the parameters for return of clinically actionable genomic results, researchers should be guided by current practice regarding the clinical standard of care within their jurisdictions
Medical, behavioral, and economic tools and outcomes associated with the return of clinically actionable genomic research results should be documented and shared to continue to lower the barriers to responsible return
Summary
The Global Alliance for Genomics and Health has approved a policy for the return of clinically actionable genomic research results, the first such policy approved by an international body. The primary mission of GA4GH, enabling data sharing, will be facilitated by an internationally relevant return of research results policy. Every research study generating clinically actionable genomic research results should have a specific protocol regarding the return of such results.
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