Abstract
PurposeThe Translational Research and Patients safety in Europe (TRANSFoRm) project aims to integrate primary care with clinical research whilst improving patient safety. The TRANSFoRm International Research Readiness survey (TIRRE) aims...
Highlights
Large databases of health data are widely used for research but less often combined.[1]
TRANSFoRm International Research Readiness survey (TIRRE) comprehensively assesses the preparedness of data repositories to participate in specific research projects
Data collected within primary care have been computerised since the 1990s5 with data widely used for research,[6] but with relatively little linkage of data beyond disease-specific programmes in individual localities
Summary
Large databases of health data are widely used for research but less often combined.[1] Linked data facilitates better measurement of clinical performance and patient health outcomes in health care systems.[2] Technical challenges of linking data are mostly considered to be the key barrier of integrating disparate heterogeneous data sources.[3] Data privacy legislations can considerably hinder research in a multinational setting.[4] Data collected within primary care have been computerised since the 1990s5 with data widely used for research,[6] but with relatively little linkage of data beyond disease-specific programmes in individual localities. In the United States, the federal electronic medical records mandate aims to save money and to modernise health information technology (IT). The increase in spending was, in part, attributed to the slow adoption of health IT systems that are neither interoperable nor easy to use
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