Abstract
BackgroundThe current study evaluated the support and education families with a child who has Juvenile Idiopathic Arthritis (JIA) received during a weekend family retreat.MethodsThirty-one parents completed surveys at the end of the retreat session. Survey questions examined parent’s perceptions of the family retreat experience including what they learned and how beneficial it was to their family.ResultsResults indicated that the family retreat was beneficial to both the children with JIA and their siblings. Children with JIA had the opportunity to see that other children have this disease as well. At the family retreat, siblings were provided the chance to see that children with JIA are capable of many accomplishments. In addition, the family retreat provided opportunities to learn from other families and offered families reduced isolation.ConclusionsThe family retreat was successful in delivering education and support to families, which might not otherwise be obtained via a clinical setting. Parents learned how to support their child with JIA, develop their child’s pain management skills, and remain positive as a family. Future research should assess if the education and support family retreats provide have long-term improvement to managing and coping with JIA.
Highlights
The current study evaluated the support and education families with a child who has Juvenile Idiopathic Arthritis (JIA) received during a weekend family retreat
Seventeen of the parents (55%) said the family retreat was “great” and thirteen (42%) of the parents reported that camp was “good” in terms of helping the child with JIA because he or she was exposed to other children and families
They often felt that their children who did not have JIA benefited by seeing other families with a child who had JIA and were able to see that “kids with arthritis can participate in a lot of things.”
Summary
The current study evaluated the support and education families with a child who has Juvenile Idiopathic Arthritis (JIA) received during a weekend family retreat. Juvenile idiopathic arthritis retreat for families Juvenile Idiopathic Arthritis (JIA) affects 294,000 children in the United States ‘[1]. These children suffer from this disease, but comorbid emotional concerns as well. Children with JIA may have lower levels of health related quality of life (HQOL) and self-esteem. They may experience social isolation, depression, and anxiety [2]. Parents of children with JIA may experience depression and anxiety related to their child’s chronic illness [4].
Sign-in/Register to view highlights & summary Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a callDisclaimer: All third-party content on this website/platform is and will remain the property of their respective owners and is provided on "as is" basis without any warranties, express or implied. Use of third-party content does not indicate any affiliation, sponsorship with or endorsement by them. Any references to third-party content is to identify the corresponding services and shall be considered fair use under The CopyrightLaw.
