Abstract
ABSTRACT Coordination of international aphasia research would minimise duplication of effort, support synergistic international activities across languages and multidisciplinary perspectives, and promote high-quality conduct and reporting of aphasia research, thereby increasing the relevance, transparency, and implementation of findings. The Collaboration of Aphasia Trialists (CATs) sought to develop an aphasia research agenda to direct future research activities, based on priorities shared by people with aphasia, family members, and healthcare professionals. Our established international research network spanning 33 countries contributed to this activity. Research literature reporting the priorities of stakeholders was reviewed and synthesized (phase 1). Representatives from Working Groups on Aphasia Assessment & Outcomes, Prognosis & Predictors of Recovery, Effectiveness of Interventions, and Societal Impact & Reintegration participated in a two-day research agenda-setting meeting. The CATs expert panel refined research objectives and identified constituent components of research and methodological developments required to address these research components. The objectives and research components were grouped into overarching themes (phase 2). The resultant list was then circulated to more than 180 CATs members for review, revision, and approval. Consensus on the final aphasia research agenda and roadmap was reached by CATs executive committee (phase 3). The expert panel identified five overarching research themes: (i) evidence-based interventions for people with aphasia, (ii) effective interventions to support those communicating with people with aphasia, (iii) cross-linguistic assessment and core outcomes for aphasia research, (iv) predictors of language recovery, and (v) clinical implementation of research findings. Within these broad themes, 30 research objectives and 91 individual aphasia research components were identified and sequentially ordered. This agenda builds on research priorities identified by people with aphasia and their families, and includes priorities of healthcare professionals and researchers, and will support the rehabilitation and recovery of people with aphasia. Our internationally relevant research agenda promotes rigor in methodology, considers international applicability, synergistic activities, and sharing of resources and expertise.
Highlights
Aphasia research benefits from a range of disciplinary perspectives including speech and language therapy, neurolinguistics, neurology, sociology, epidemiology, and neuropsy chology (Gyorfi & Rebec-Nagy, 2015; Vallumrød et al, 2016)
Thirty-four existing aphasia research priorities were identified from 226 unique uncertain ties related to life after stroke, generated by the James Lind Alliance priority setting partnership work between stroke survivors, carers, and health care professionals (Pollock et al, 2012); aphasia was named twice among the top ten research priorities for life after stroke (Pollock et al, 2012) (Table 1)
The 34 unanswered aphasia-related priorities were further refined in priority setting partnership work resulting in generation of the top 10 research uncertainties related to aphasia following stroke (Franklin et al, 2018) (Table 1)
Summary
Aphasia research benefits from a range of disciplinary perspectives including speech and language therapy, neurolinguistics, neurology, sociology, epidemiology, and neuropsy chology (Gyorfi & Rebec-Nagy, 2015; Vallumrød et al, 2016). The impact of aphasia is not bound by geography, nor limited to the person with aphasia (Fotiadou et al, 2014); it extends to spouses, families, carers, support groups, employers, and society (Ellis et al, 2012; Grawburg et al, 2014). With such a wide impact, aphasia research priorities may vary depending on the stakeholder and geographical location (Shrubsole et al, 2017). We sought to collate reported aphasia research priorities and existing research activities to elucidate gaps in aphasia research and generate an international aphasia research agenda and roadmap that reflects the perspectives of international stakeholders and multidisciplinary researchers working within varying research infrastructures, and resources
Sign-in/Register to view highlights & summary Sign-in/Register to access full text options 
Free) 
Talk to us
Join us for a 30 min session where you can share your feedback and ask us any queries you have
Schedule a call
