An adapted walking intervention for a child with Pitt Hopkins syndrome

Abstract

Purpose: To investigate the effects of a community-based adapted walking intervention on a child with Pitt Hopkins syndrome (PTHS).Methods: A four-year old boy with PTHS participated in a 12-week intervention comprising five one-hour long walking sessions per week at a local daycare. Walking sessions used the Upsee mobility device (Firefly by Leckey Ltd., Ireland). Outcome measures included Goal Attainment Scaling and the Mobility Ability Participation Assessment.Results: Parental and caregiver goals for social interaction, physical activity and physical health surpassed expectations by post-testing. Gains were not sustained at three months follow-up. The participant’s ability and mobility may have increased following the intervention.Conclusions: Participants with PTHS may benefit from regular physical activity and early intervention. The Upsee mobility device is a feasible and fun way to promote inclusive community-based physical activity and social engagement in a young child with PTHS. Further research into the health benefits of physical activity and the Upsee for children with PTHS may be warranted.Implications for RehabilitationPhysical activity may be beneficial for a child with Pitt Hopkins syndrome, a rare genetic disorder.New design, implementation of mobility intervention for a child with neurodevelopmental disabilities.The Upsee mobility device may offer physical benefits for a child with a neurodevelopmental disability.The Upsee mobility device may offer social benefits for a child with a neurodevelopmental disability.