Abstract
Amy Rule's life has been full of formative experiences. As the first person in her family to be born with kniest dysplasia, a rare skeletal dysplasia, much of her younger years involved travelling to and receiving care at a large specialist medical centre. There, she met other children with skeletal dysplasia from different countries and socioeconomic backgrounds. It “really sparked my interest in health equity and global health because I had this window into what other kids' lives were like. I was confronted with inequity in terms of health but also in terms of economics, education, and civil rights”, she recalls.
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