Abstract

In Alzheimer’s disease, two fundamental aspects become important for caregivers: ambiguity and ambivalence. Thus, anticipatory grief is considered an active psychological process that is very different from the mere anticipation of death. The present study aims to determine which characteristics of family caregivers of people with dementia, such as age, gender, educational level, relationship with the person with dementia, years with dementia or years as a caregiver, are related to the presence of anticipatory grief. A cross-sectional design was employed. The sample consisted of a total of 129 subjects who cared for a family member with dementia. A sociodemographic data sheet and a battery of tests measure the presence of anticipatory grief, caregiver burden and/or psychopathology. The results obtained allowed us to confirm some of the hypotheses regarding the anticipatory grief construct, the importance of the care time factor, in years and per day, as well as the relevance of the previous demographic and psychopathological profile (being female, spouse function and possible depressive symptomatology). Likewise, from the prediction analyzes performed, it seems that these variables can predict anticipatory grief. These results propose interesting opportunities to formulate care proposals to professionals and family caregivers in relation to care tasks and caregiver skills.

Highlights

  • Grief is related to a great variety of losses, which can be real or symbolic, physical, relational, functional, etc

  • The sample consisted of a total of 129 subjects, mostly women (67.8%), aged between and 85 years (M = 62.09, SD = 10.89), who were married (82.5%) and had primary or secondary education (66.1%), and who had been caring for a family member with dementia, in most cases with an Alzheimer’s disease diagnosis (65.1%), that was between and 10 years of evolution (86.3%)

  • The majority of caregivers spent 7 days a week caring for their family member (55.0%), and it was usual for them to be the only caregiver of the family member (53.1%) and without the assistance of a professional caregiver (70.0%)

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Summary

Introduction

Grief is related to a great variety of losses, which can be real or symbolic, physical, relational, functional, etc. In the case of anticipatory grief, it is an emotional response to an expected and inevitable loss, which begins before it occurs, and allows the necessary readjustments until such time as it occurs [1]. There are two basic types of ambiguous loss [3]. The family members perceive a certain person as physically absent but psychologically present since it is not certain whether the person is alive or dead. This would be the case in disappearance or for contenders in armed conflicts. In the second type of ambiguous loss, the person is perceived as physically present but psychologically absent.

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