Almost invisible: A review of inclusion of LGBTQI people with cancer in online patient information resources

Abstract

ObjectiveThis review assessed the inclusion of lesbian, gay, bisexual, trans, queer and/or intersex (LGBTQI) people in online cancer information. MethodsThe websites of Australian cancer organizations were reviewed to identify if they included LGBTQI people and the extent and nature of this inclusion. Websites that did not include LGBTQI people were then reviewed to identify if information was implicitly LGBTQI inclusive. International LGBTQI cancer information resources were reviewed to identify key content. ResultsOf sixty-one Australian cancer organization websites reviewed, eight (13%) mentioned LGBTQI people, including 13 information resources targeted to LGBTQI people and 19 general cancer information resources that mentioned LGBTQI people. For Australian cancer websites that did not mention LGBTQI people, 88% used gender neutral language to refer to partners, 69% included a range of sexual behaviours, 13% used gender neutral language when referring to hormones or reproductive anatomy but none acknowledged diverse relationship types. Internationally, 38 LGBTQI-specific cancer information resources were identified. ConclusionsCancer patient information resources need to be LGBTQI inclusive. LGBTQI-targeted resources are required to address this population’s unique needs and improve cultural safety and cancer outcomes. Practice implicationsRecommendations are provided for LGBTQI inclusive cancer patient information resources.