Abstract
ABSTRACT Purpose: Choice and autonomy are recognized as values facilitating genuine self-determination. Subsequently greater understanding of these concepts in decision-making practices of adults with intellectual disabilities is required. Aims: The twofold aim of this research study was to ascertain the core concern (most important issue) for adults with intellectual disabilities as they make choices and exercise autonomy and to develop a theory explaining how these adults attempt to resolve their core concern. Methods: This research study undertaken in a single organization in the Republic of Ireland applied classic-grounded theory methods. Participants included twelve adults who were attending day services and accessing a variety of other organizational services. Interviews were undertaken, between January 2012 and September 2013, in different contexts on up to 4 occasions (46 interviews). Data analysis utilized concurrent processes of constant comparative analysis. Results: The main issue of concern for these participants was ‘control’ in environments that were controlling of them and they responded by ‘aligning with the flow of control’ explained by how they framed control, emotionally connected and adjusted in compliance situations. Conclusions: This theory offers a conceptual delineation of the way adults with intellectual disabilities manage the daily tensions and harmonies in decision-making.
Highlights
Individuals who ‘own’ their lives make choices that are inherently tied to a sense of self, which is reflected in the traditional philosophical concept of autonomy (Moore, 2019)
Reality ther apy is a method of counselling which teaches people how to direct their own lives, make more effective choices, and how to develop the strength to handle the stresses and problems of life. As his theoretical thinking around the underpinnings of Reality Therapy developed Dr Glasser based its’ philosophical under pinnings on the theory named Choice Theory and changed the name of the Institute from Reality Therapy to the Choice Theory Institute (Glasser, 1998). This emergent theory characterizes decision-making practices of adults with intellectual disabilities as those who create or maintain an equili brium based on their control beliefs, emotions and the adjustments they make in compliance situations while accessing services and support
The theory presented within this article highlights the dilemmas, of adult research participants, accessing ser vices, availing of supports, while having differing levels of control in the context of making life choices
Summary
Individuals who ‘own’ their lives make choices that are inherently tied to a sense of self, which is reflected in the traditional philosophical concept of autonomy (Moore, 2019). Individual autonomy including the freedom to make one’s own choices and independence of persons;” (UNCRPD, 2006, Article 3(a)). The stronger personal autonomy is advanced and productive in societies, individual citizens are enabled to become best self-advisors on compliance to his/her expertise and life style (Gumbis et al, 2017). Understanding and supporting the individuals ‘quality world’ will enable the person find satisfaction in their relationships with- relevant others so engaging in more internal control psychology (Glasser, 1998)
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