Abstract
Background: Chronic health conditions, secondary conditions, and decreasing functional ability related to aging and/or changes in underlying impairment may influence participation for persons aging with long-term physical disability (AwD). Objective: To examine sample integrity and baseline findings through exploration of associations of sociodemographic, health, and disability factors with social participation for persons AwD. Methods: This is a longitudinal cohort study following persons AwD over three years, reporting baseline cohort study data. A convenience sample of 474 persons AwD aged 45–65 reporting physical disability of ≥5 years’ duration was recruited through community organizations and social media. The cohort was majority female (66.7%) and single (62.0%), and over one-third (38.6%) was non-White. Pain, fatigue, depression, ability to participate in, and satisfaction with, social roles and activities were measured with the Patient Reported Outcomes Measurement Information System. Results: Participants aged 55–60 and 61–65 had significantly lower rates of employment and marriage and higher rates of living alone than participants aged 45–54. Participants reported higher rates of fatigue, pain, and depression and lower ability to participate in, and satisfaction with, participation in, social roles and activities than the general population. Ability to participate and satisfaction with participation were highest among Black/African American participants. Conclusions: Participants reported higher rates of common AwD symptoms and lower ability to participate and satisfaction with participation than the general population, consistent with prior studies of AwD samples. This cohort reflects the AwD population and can be considered an AwD sample, comparable to those found in existing literature. The focus of future analyses will be to gain a greater understanding of chronic health conditions, incidence of falls, engagement in everyday life activities, and the impact of the environment.
Highlights
Aging with a disability is the phenomenon of living long-term with impairment and disability that begins in early and/or mid-life and continues over the lifecourse.[1,2] investigation of aging with long-term physical disability (AwD) dates back over 30 years, to date, most of the research has been small-scale and focused primarily on individuals with lifelong and early-onset disabilities.[3,4,5] In contrast, our research focuses on persons AwD between the ages of 45 and 65 living in the United States, with disability onset from birth to age 60, to understand participation patterns and changes in this mid-life phase
Participants reported higher rates of common AwD symptoms and lower ability to participate and satisfaction with participation than the general population, consistent article can be found at the end of the article
Physical disability, cohort, health, participation
Summary
Aging with a disability is the phenomenon of living long-term with impairment and disability that begins in early and/or mid-life and continues over the lifecourse.[1,2] investigation of aging with long-term physical disability (AwD) dates back over 30 years, to date, most of the research has been small-scale and focused primarily on individuals with lifelong and early-onset disabilities.[3,4,5] In contrast, our research focuses on persons AwD between the ages of 45 and 65 living in the United States, with disability onset from birth to age 60, to understand participation patterns and changes in this mid-life phase. Fatigue, depression, ability to participate in, and satisfaction with, social roles and activities were measured with the Patient Reported Outcomes
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