Adults with Childhood Onset Disabilities: A Focused Review of Three Conditions

Abstract

Adults with childhood onset conditions now have improved survival rates, and are experiencing health, medical, and performance issues related to their original conditions or treatments. The published science regarding the medical and performance issues of adults with cerebral palsy, spina bifida, and pediatric central nervous system cancer is increasing in quality, rigor, and clinical usefulness. This article is a systematized, focused review, with an appraisal of the literature, of these three conditions. Most of the published research is observational, from which recommendations can be made; however, there are few studies that demonstrate effective interventions. Although each of the three conditions has associated specific health and medical issues, they also have common problems and concerns related to health care, activity, performance, participation, and quality of life.