Adopted Individuals’ Information Management Strategies for Managing Uncertainty about Genetic Family Health History

Abstract

ABSTRACT Knowledge of genetic family health history (GFHH) plays an important role in encouraging individuals to take preventative health measures, but adopted individuals often face barriers to accessing this information. This study examines how uncertainty about GFHH is associated with various information management strategies for adopted individuals. We surveyed 154 adopted individuals to assess their uncertainty about GFHH, appraisals of the likely outcomes of information seeking, and preferences for information management. Data were analyzed using structural equation modeling. Results generally supported hypotheses, with (a) uncertainty discrepancy predicting anxiety and negative outcome assessments, (b) anxiety predicting negative outcome and efficacy assessments, and (c) negative outcome assessments generally predicting efficacy assessments and information management strategies. Efficacy assessments, however, were not significant predictors of information management strategies. The theoretical and translational implications of the findings are discussed.