Abstract
The expansion of genetic and genomic testing across medical specialties and the changing workforce demographics of certified genetic counselors (CGCs) have led to concerns of a workforce shortage. We assessed the number of genetic counselors working in the Southern United States—a rural and medically underserved region—using various online and professional resources. We identified 683 practicing genetic counselors across the Southern U.S. and 160 specializing in prenatal genetics. CGCs were concentrated in urban areas; counties with a CGC had a significantly higher proportion of minority residents and median household income than counties without a CGC. There is an average of 2.97 prenatal CGCs per 5000 high-risk births in the South. Alternative delivery models are needed to increase access to counseling services in the Southern U.S., particularly for low income households and those of high risk pregnancies. Increased provider education and patient educational materials can help facilitate informed decision-making in prenatal settings as genetic technologies gain a stronger foothold and bring value to medical practice.
Highlights
Advances in genetics and genomics research, new testing technologies, electronic medical records, and general public interest have combined to usher in the precision medicine movement
We explored the accessibility of prenatal certified genetic counselors (CGCs) in this region, given the already limited access to prenatal care
Number of practicing genetic counselors: We identified a total of 683 practicing CGCs in the Southern United States (Figure 1)
Summary
Advances in genetics and genomics research, new testing technologies, electronic medical records, and general public interest have combined to usher in the precision medicine movement. The expansion of genetic and genomic testing may pose greater burdens on providers, on genetic counselors, to adequately educate patients and promote informed decision-making. The limited number of certified genetic counselors (CGCs) and the lack of diversity in the profession has raised concerns regarding access and widening health disparities in light of increasing demands [1,2]. CGCs are specially trained to educate patients about their options for testing, communicate test results, and provide support services. It is estimated that more than 4000 genetic counselors are currently practicing in the United. Most CGCs practice in cancer (52%), followed by prenatal (41%) and pediatric (29%)
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