Abstract
Marked racial disparities exist in rates of living donor kidney transplantation (LDKT). The Living Organ Video Educated Donors (LOVED) program is a distance-based, mobile health program designed to help Black kidney transplant wait-list patients advocate for a living donor. This study reported on the acceptability outcomes to aid in future refinements. Participants were randomized to LOVED (n = 24, mean age = 50.9 SD (9.2) years), male = 50%) and usual care groups (n = 24 (mean age 47.9 SD (10.0), male 50%). Four LOVED groups completed an eight-week intervention that consisted of six online video education modules and eight group video chat sessions led by a Black navigator. Qualitative analysis from post-study focus groups resulted in six themes: (1) video chat sessions provided essential support and encouragement, (2) videos motivated and made participants more knowledgeable, (3) connectivity with tablets was acceptable in most areas, (4) material was culturally sensitive, (5) participation was overall a positive experience and (6) participants were more willing to ask for a kidney now. The video chat sessions were pertinent in participant satisfaction, though technology concerns limited program implementation. Results showed that the LOVED program was acceptable to engage minorities in health behavior changes for living donor advocacy but barriers exist that require future refinement.
Highlights
The burden of end-stage renal disease (ESRD) in the United States reached an all-time high in 2018 with an unadjusted incidence of 390.2 cases per million people [1]
Even though transplantation is acknowledged as the best treatment for ESRD patients, total transplants have stabilized over the last decade, with
How did you feel interfacing with the tablet computer that we provided and the programs we used for the Living Organ Video Educated Donors (LOVED) program?
Summary
The burden of end-stage renal disease (ESRD) in the United States reached an all-time high in 2018 with an unadjusted incidence of 390.2 cases per million people [1]. Out of the nearly 660,000 people with ESRD, approximately 90,000 patients were on the UNOS kidney transplant wait-list. Even though transplantation is acknowledged as the best treatment for ESRD patients, total transplants have stabilized over the last decade, with. When stratified by deceased and living donor kidney transplants (LDKTs), there are notable trends. A more concerning fact is the marked disparity between Black and White LDKT recipients during the same time frame. The prevalence of LDKTs in White patients was 44.9% (3696/8226) in 2015 and decreased to 33.0% (n = 3367/10,217) in 2020, whereas the prevalence for Black patients was
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